Local & New York State Websites
Down Syndrome Aim High Resource Center is a nonprofit organization in the capital district, which exists to enlighten and encourage the broader community to recognize the individuality, uniqueness and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families.
The Self-Advocacy Association of New York State, Inc. (SANYS) is a not-for profit, grassroots organization run by and for people with developmental disabilities. Their goal is to help create a person-centered and person-directed system of supports. To further this goal, the SANYS executive board supports self-advocates and self-advocacy groups regionally and statewide. SANYS encourages them to speak for themselves individually and collectively.
New York State Department of Health website
The Down Syndrome Connection of Long Island – the goal of the DSCLI is to unite the Down syndrome community of Long Island and promote a better quality of life for the many people living here with Down syndrome.
Alexanders Angel’s – Furthering awareness and supporting research on Down syndrome.
Asperger Syndrome and High Functioning Autism Association – providing information and support from Montauk to Manhattan
The National Down Syndrome Congress: The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
The National Down Syndrome Society:
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.
The National Association for Down Syndrome is a not for profit organization based in Chicago that offers information, support and public awareness.
National Dissemination Center for Children with Disabilities; information in Spanish and English containing a wealth of information on children and adults with disabilities
Autism Speaks website
The Autism Society of America – Improving the Lives of All Affected by Autism
Organization for Autism Research
HEALTH RELATED WEBSITES:
Dr Len Leshin’s website which contains a collection of articles and healthguides and other information for parents. Dr. Leshin is a noted pediatrician, as well as father to a boy with Down syndrome.
1999 Healthcare Guidelines for people with Down syndrome
Growth Charts for people w/ DS up to age 18
www.lumindfoundation.org - Lumind Foundation
Formerly Down Syndrome Research and Treatment Foundation (DSRTF) and Research Down Syndrome (RDS) dedicated to finding a treatment to improve cognition including learning, memory and speech for individuals with Down syndrome.
the website for the Down Syndrome Research Foundation located in British Columbia, Canada
Council for Exceptional Children – the vision and voice of special education
Wrights Law provides advice and seminars on special education law and advocacy.
Down Syndrome International is a federation of international organizations and individuals committed to ensuring the quality of life and human rights for all people with Down syndrome.
website for World Down Syndrome Day (March 21st)
The Adaptive Sports Foundation, located in Windham NY, promotes physical activity for children and adults with disabilities by offering winter programs for recreational skiing, snowboarding, yoga, and personal fitness.
Dr. Brian Skotko’s website – Dr Skotko is a specialist in the Down Syndrome Program at Childrens Hospital in Boston, and brother to a young woman with Down syndrome. Blog and other great info.
Down Syndrome Pregnancy, includes the exceptional e-book “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome”
the website for Exceptional Parent magazine;
Practical information for parents and professionals concerned with the lives of children and young adults with disabilities.
Support groups and bulletin boards
Down Syndrome Education Online offers a comprehensive, reliable and up-to-date range of information, resources and servicees for families, practitioners and researchers caring for, supporting and investigating Down syndrome.
A resource for those who love someone with Down syndrome
Parenting Special Needs – the online magazine serving the special needs community
Best Buddies is dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.
The Fathers Network is an organization that celebrates and supports fathers and families raising children with special health care needs and developmental disabilities.
International Mosaic Down Syndrome Association
Mosaic Down Syndrome information
The website for the Riverbend Down Syndrome Parent Support group that contains a lot of information pertaining to Down syndrome
Dr. James D. MacDonald's Website which provides parents with information and practical tools for taking a more active role in helping their child socialize and communicate; Programs for parents, therapists and educators.
Operation Autism – a resource guide for military families
The Social Security and Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants.
Home page: http://www.ssdrc.com/
This page has information about qualifying for disability: http://www.ssdrc.com/disabilityquestions1-12.html
*This list is not comprehensive and the websites contained on this list are merely suggestions. ACDS makes no claims, promises or guarantees about the accuracy, completeness, or adequacy of the contents of the information contained in these references.