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ACDS Resources
 

Local & New York State Websites

www.aim-high.org
Down Syndrome Aim High Resource Center is a nonprofit organization in the capital district, which exists to enlighten and encourage the broader community to recognize the individuality, uniqueness and capabilities of individuals with Down syndrome, and to reflect the hopes and dreams of those individuals and their families.

www.sanys.org
The Self-Advocacy Association of New York State, Inc. (SANYS) is a not-for profit, grassroots organization run by and for people with developmental disabilities. Their goal is to help create a person-centered and person-directed system of supports. To further this goal, the SANYS executive board supports self-advocates and self-advocacy groups regionally and statewide. SANYS encourages them to speak for themselves individually and collectively.

www.health.state.ny.us
New York State Department of Health website

www.dscli.org
The Down Syndrome Connection of Long Island – the goal of the DSCLI is to unite the Down syndrome community of Long Island and promote a better quality of life for the many people living here with Down syndrome.

www.alexandersangels.org
Alexanders Angel’s – Furthering awareness and supporting research on Down syndrome.

www.ahany.org
Asperger Syndrome and High Functioning Autism Association – providing information and support from Montauk to Manhattan

National Organizations:

www.globaldownsyndrome.org
Global Down Syndrome Foundation: Dedicated to significantly improving the lives of people with Down syndrome through RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY

www.ndsccenter.org
The National Down Syndrome Congress: The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.

www.ndss.org
The National Down Syndrome Society:
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.

www.nads.org
The National Association for Down Syndrome is a not for profit organization based in Chicago that offers information, support and public awareness.

www.nichcy.org
National Dissemination Center for Children with Disabilities; information in Spanish and English containing a wealth of information on children and adults with disabilities

www.autismspeaks.org
Autism Speaks website

www.autism-society.org
The Autism Society of America – Improving the Lives of All Affected by Autism

www.researchautism.org
Organization for Autism Research

HEALTH RELATED WEBSITES:

www.ds-health.com
Dr Len Leshin’s website which contains a collection of articles and healthguides and other information for parents. Dr. Leshin is a noted pediatrician, as well as father to a boy with Down syndrome.

www.ds-health.com
1999 Healthcare Guidelines for people with Down syndrome

www.growthcharts.com
Growth Charts for people w/ DS up to age 18

www.lumindfoundation.org - Lumind Foundation
Formerly Down Syndrome Research and Treatment Foundation (DSRTF) and Research Down Syndrome (RDS) dedicated to finding a treatment to improve cognition including learning, memory and speech for individuals with Down syndrome.

www.dsrf.org
the website for the Down Syndrome Research Foundation located in British Columbia, Canada

Education Links:

www.cec.sped.org
Council for Exceptional Children – the vision and voice of special education

www.wrightslaw.com
Wrights Law provides advice and seminars on special education law and advocacy.

INTERNATIONAL WEBSITES:

www.ds-int.org
Down Syndrome International is a federation of international organizations and individuals committed to ensuring the quality of life and human rights for all people with Down syndrome.

www.worlddownsyndromeday.org
website for World Down Syndrome Day (March 21st)

 

MISCELLANEOUS WEBSITES

www.adaptivesportsfoundation.org
The Adaptive Sports Foundation, located in Windham NY, promotes physical activity for children and adults with disabilities by offering winter programs for recreational skiing, snowboarding, yoga, and personal fitness.

www.brianskotko.com
Dr. Brian Skotko’s website – Dr Skotko is a specialist in the Down Syndrome Program at Childrens Hospital in Boston, and brother to a young woman with Down syndrome. Blog and other great info.

downsyndromepregnancy.org
Down Syndrome Pregnancy, includes the exceptional e-book “Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome”

www.eparent.com
the website for Exceptional Parent magazine;
Practical information for parents and professionals concerned with the lives of children and young adults with disabilities.

www.downsyndrome.com
Support groups and bulletin boards

www.down-syndrome.org
Down Syndrome Education Online offers a comprehensive, reliable and up-to-date range of information, resources and servicees for families, practitioners and researchers caring for, supporting and investigating Down syndrome.

www.downsyn.com
A resource for those who love someone with Down syndrome

parentingspecialneeds.org
Parenting Special Needs – the online magazine serving the special needs community

www.bestbuddies.org
Best Buddies is dedicated to enhancing the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.

www.fathersnetwork.org
The Fathers Network is an organization that celebrates and supports fathers and families raising children with special health care needs and developmental disabilities.

www.imdsa.org
International Mosaic Down Syndrome Association

www.mosaicdownsyndrome.com
Mosaic Down Syndrome information

www.riverbendds.org
The website for the Riverbend Down Syndrome Parent Support group that contains a lot of information pertaining to Down syndrome

www.jamesdmacdonald.org
Dr. James D. MacDonald's Website which provides parents with information and practical tools for taking a more active role in helping their child socialize and communicate; Programs for parents, therapists and educators.

www.operationautismonline.org
Operation Autism – a resource guide for military families

The Social Security and Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for disability, how to appeal a claim in the event of a denial, how to navigate the federal system, and how to avoid certain mistakes that are commonly made by applicants.

Home page: http://www.ssdrc.com/

This page has information about qualifying for disability: http://www.ssdrc.com/disabilityquestions1-12.html

*This list is not comprehensive and the websites contained on this list are merely suggestions. ACDS makes no claims, promises or guarantees about the accuracy, completeness, or adequacy of the contents of the information contained in these references.

 

 

 
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